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In Their Own Words

Archive: Past Writing

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In Their Own Words:  Writing the Experience of Cancer
"In Their Own Words" features writing from The Writers' Group at Stanford Cancer Center in Palo Alto, CA, men and women who write together and share their stories of cancer and of life.  New selections will be posted on a monthly basis.  To learn more about the writing program at Stanford Cancer Center,"Words That Heal:  Writing Together Through Cancer," click here:  http://cancer.stanfordhospital.com/forPatients/services/supportiveCareServices/actWordsThatHeal

Each writer has given his or her permission for the work that appears on this site.  All rights revert to the authors.


(If you are inspired by the words of these writers, let us know by sending an email to Sharon.  If you want to write out of your own experience of cancer, then go to  www.writingthroughcancer.com for a month's collection of weekly writing prompts).


For an archive of earlier writing by the Stanford Center Cancer Writers, click here.




Floating

By Jasan Zimmerman 

 

            I always want to prolong the floating that takes place right after the anesthesia is administered.  Those 1 or 2 seconds, or, if I’m lucky, 3 or 4, are the best feeling few seconds I’ve every felt in my life.  I see now how heroin addicts can chase that high and risk life and limb in doing so. 

Last time I had surgery I asked the anesthesiologist to inject it slowly so that I could really enjoy it.  Once I realized that I was floating the blackout started.  It’s like a movie, where the scene fades out, into blackness.  My vision grew fuzzy and the darkness came, covering everything, until there was a pinpoint of light in each eye.  Then, nothing. 

I always wanted to introduce myself to everybody in the OR, make it seem more personal to them.  I don’t want to be “31-year-old male with 4th branchial cleft cyst” or “15-year-old male with thyroid cancer.”  I want to be Jasan, the dude that needs a little help.  The last anesthesiologist told me to call her by her first name after I told her to call me Jasan, not Mr. Zimmerman.  Mr. Zimmerman makes me feel old.

The personal touch of me using her first name gave me immeasurable comfort.  Dr. So-and-so can hardly be bothered to come down from her ivory tower to speak to me, but Christy is right there by my side, ready to do whatever is necessary to make me comfortable. 

I never had time to introduce myself to the people milling about in the OR because I got knocked out too quickly.  I want to know the nurses, and anesthesiologist, and surgeons, and want them to know me.  I want them to know that I’m an individual whose life will be strikingly affected by their decisions in that room. 

Everything seems so ordered in there—the big bright lights, the monitors, all the tools laid out, the equipment, everything in its own place.  I’m part of it, but I don’t want to be forgotten, strewn aside with the used gloves and gowns and surgical detritus.  I want to be remembered and thought of and, most importantly, fixed.  I don’t want the surgery to be for naught—I demand success.  If everybody’s on the same page, pulling for the same goal, something good is bound to happen.  That’s a little sliver of control that I want to be able to exert over an otherwise uncontrollable situation.  But, alas, the anesthesia only takes a few seconds to kick in, and I float away with all of my dreams and desires. 


Decision
By Ann Emerson

Nightbirds brood under the migratory stars,
tiny lights in the dark; and this wide land

stretches past the margins of anything
I could dream. In the dark I kneel in tall grass

and seek myself, thirsty as a root dipping
into a windless lake, baring my need;

and strength is suddenly mine:
I stare into the glassy surface

of who I was, fear rattling down my spine;
into who I am, a delicate structure

of branches, a rich excess of leaves.
To mourn lost life

or bear its pain:
the choice is mine to make,

to stand and murmur to the wind
that this humble flesh might endure.



Befriending the Body

By Nancy Tune

 

 

I have tried for a long, long time to ignore my body. It did not serve me well when I was an adolescent. Upon realizing, at 13, that my brain was much more serviceable than my body, I took to relying on my brain. Even pregnancy could be dealt with by the brain. So many grams of protein per day, finding a childbirth preparation teacher and practicing what she taught every day, choosing a doctor for me and one for the baby. When I was very pregnant, I looked at myself in the mirror and thought of photographs in National Geographic. I was startled by how elemental I looked, but I turned away from that and back to thinking.

 

Cancer jolted me back to the body. I couldn’t think my way out of cancer. Couldn’t make myself better as I could when the ailment was depression or anxiety. After three years of clear scans, I have moved back into my brain, where I know the terrain. But just lately, I have a new feeling: a desperate desire to have my body keep going. I’m waiting for results of two scans, with no particular fear other than the low-key dread that has been in me since my diagnosis. I am hoping, with a terrible pressure I did not have before, that I will have more time, that I will be able to take care of my husband as long as he knows me, spend more time with my children, write, hike, make people laugh. I am not done, I think. Do not step on my future.

 

I have not yet emailed the oncologist for the results of the scans. I will probably not wait a week for my appointment to ask her, but right now, I’m just settled in here, treasuring my body.



89

 

By Jessica Tekla Les

 

89.  That’s how many people have seen my breasts so far this summer.  I look in the waiting room around me silent except for the gurgling tank containing aimless fish and preened plastic sea plants.   Everyone else seated are in clothes.  That means that they are not patients.  They are the waiters.  Gowned people move in and out in response to their names.

 

I lay on the table.  Classic Spanish guitar hums in on the speakers.  Mood music for the x-rays.  The techs fidget me around by tugging on a crisp white sheet that covers my foam body mold.  A millimeter here, another there.  Green lasers adorn this room.  My linear accelerator 11. 

 

The cylindrical metal x-ray machine looks like a 1952 satellite retrieved from space.  It rotates its head from remote control as if inquiring about the scar on my chest.  Everybody leaves the room.  Then it’s just me, the robot head, and classical Spanish guitar.

 

“Just breath normally” over the intercom.  Right, breath normally.  The bigger the breath the more my right lung gets zapped. Breathe too little and the meager remains of my right breast are missed altogether. 

 

So, I try to breathe normally.

 

The robot head gives a final nod. I see my left eye reflected in its face- the glass covered hole where the harsh hum comes from signaling that that x-rays are being shot.  Does the robot head shooting x-rays actually make that sound or is it a warning for others? 

 

I stare back up at the ceiling where I discover the source of the green laser.  After childbirth some women say they’ve lost their modesty.  So many people have seen their vagina that who really cares anymore.  This is where I’ve arrived at about my mangled breast.   It is a new kind of object.  A medical object.  I no longer identify it as sexual.  Something to be fondled, pushed up in a sexy bra, tantalizing in a bikini.  It is no longer functional either since it won’t be able to produce and expel milk properly.  It is a piece of flesh that is pesky.  To be treated.   Fixed because it has done wrong.

 

“Your scar is healing nicely.”  Are you kidding?  It isn’t gaping open if that is what you mean.  The skin has in fact closed. 

Excellent job body! Do you notice the nipple is pointing the wrong way?  That there are creases pointing down to my toes like erosions in an excavated, limestone valley?

 

The radiation tech returns to the twilight of my radiation treatment room. She gently folds my right hand, then arm back into my gown, carefully covering my chest.  “I’ll see you tomorrow.”  Yes, tomorrow.

 



On My Body And Cancer
 
by Joan Moeller

There is no peace anymore between my body and me.
Expired treaties signed on the dawn of surprise attacks 
On the battlefields of skin and bone lay
Splintered like shrapnel into flesh, with the fire of revelation searing
My body that once amassed armed regiments of recovery and survival
To march in ordered plodding their measured course thru the life of This Victor.

There is no parade for the return of the soldier I am anymore,  
No garlands of peace or ribbons of victory shine in my mirror.
Ravaged by a desperate retreat I see my body
Submitting without surrender to lay captive, still
Plotting counter attacks; shamed by defeated battles into secrecy;
Whispering to me from the shoulder of death I hear
The voice of my body: purpose and hope confessing
That the enemy is not The Enemy, that the war is not The War,
The body is not The Reason, the peace is not The Point…

Whispers lost to the certainty and comfort of pain.

There is no great revelation, no redemption.
From captivity I know my body: my savior; I  
Mark the days with chalk on sheetrock walls,
Vow there will be no treaties anymore, learn
That the fight is not within me after all, but is
Infusing thru a PIC line defying strategy and conquest…
A war waged with reality as apparitions from a chemo fog
Assemble to dance. 

There is no excuse, no plaintive pardon begged;
The Innocent Ingénue of a provincial peace once
Penned on the fragile parchment of my life
Brokered in my name and bound by silk ribbons kept
Hidden inside the vault my body had become, is now
Excavated like some ancient artifact: chemically cleaned, set on display.

There is no sanctuary.
The rules of this new world of war are written
On my skin and beneath it;
The past mythologies held hostage,
The future an Irreverent Mercenary
Rescued by a merry band of gypsy souls
Spirited away under cover of night, running  
Across the wild battlefield to safety, to salvation,
To the desert tents of recognition where my ancestors  
Promise me there is no peace being struck here,
No homeland to fight for,
That I do not have to barter a pact
With my body or theirs, that my hope
Is a neutral zone
Where the furtive snake of a mutant evil
Played dead, but never bled:
Instead it lays still
Stealth in the grasses of my recovery with me
All coiled up…  
But hissing.


Sometimes It Is Necessary
By Ali Zidel Meyers
 
Sometimes it is necessary
to pull back the bow
and close your eyes
shooting at a spot
dark between trees,
trusting something awaits
and invites that arrow
with its thin trail of air behind,
guiding itself toward its own
temporary purpose.
 
It will find refuge
in that still blackness
residing between gangly trees
in the hushing silence
under a black and white
star-spangled blanket
overhead.
 
Can you hear that quiet?
Loud as diamonds,
known only to forest dwellers
or lucky visitors
escaping the arcade
of busy lives.



 

Sharon Bray, Ed.D., copyright 2008, Wellspring Writers,  all rights reserved.

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